You may, or may not know this, but I have to say that 2008 was my worst year on record. I started 2008 by learning that my new baby had a terminal non treatable disease. The same disease that my 4
th baby died from 8 years ago. It was devastating and I was so lonely. I was missing my friends in Florida, and my family was about to have their worst year ever making it hard for them to support me. Only a few months latter, my husbands grandfather died from cancer. It was sad for us. We were not able to go to the funeral because my baby was going into surgery to get a feeding tube which he desperately needed because he was rapidly loosing his ability to swallow. That summer my sister from Florida was visiting My mother in Utah. She was pregnant with twins. I really wanted to go out and see her, but we thought that the baby was to fragile for such a long ride. Just before she was scheduled to fly home to Florida, she went into labor. It was way to early to have her babies (3 months early). The doctors could not stop what had started, and she had her babies. She lost one, and one was in the intensive care. I had to go and support her as she buried her baby. His name was Joesph named after his father. He was buried not far from my baby Sarah who was named after my sister. It was a very sad time from all of us. It brought up a lot of sad feelings remembering what I went through with my Sarah, and I could not help but think that the next funeral I would attend would be that of my precious baby Zachary. On the way home Zachary had a cluster of long hard seizures. We were about an hour from the closest city and four hours from home. I was worried that we would have to call 911, and be stuck in a hospital far from home. With a lot of medications, and silent prayers Zachary finally calmed down and fell asleep. We made it home but
Zacharys seizures were getting out of control. We ended up in the Hospital again to get some help regulating the medications, and calming his seizure pattern down. It was one of many visits in 2008. Back home in Utah, my sister was living with my grandma
Maisak. She could not go home to Florida because her baby was in the intensive care and nobody knew if he would live or die. The poor baby was life-flighted to Primary
Childrens Hospital in Salt Lake where he underwent numerous surgeries and stayed for many months. Five months latter the baby was doing miraculously well, and was able to go home. Only a few days latter, my sister and her family flew back to Florida. Things, however did not seem to calm down for my family. By the end of 2008 My Dad was diagnosed with prostate cancer. My grandma had terrible pain due to back problems, and my husbands Grandmother is in an assisted living facility and not doing well, requiring daily visits from my in laws to help make sure she has all that she needs. I was so happy to see 2008 go! And I am hopeful in 2009. I so much want to be happy this year, and I'm trying my best to have a positive attitude. So far so GOOD! In January my dad had surgery to remove his prostate, and it went well. I was nervous for February because Zachary's nurse who comes three times a week at night will be out of town for 9 days. Last night was our first night of a long week, and guess what, Zachary slept all night long! Not normal behaviour. I was so happy for the good start to a long week. Chris will be going out of town soon, so I'm keeping my fingers crossed! Wish me luck, and I hope that everyone has a wonderful 2009!
We chose not to take him to the hospital and I am taking him back to the Doctors today. Thursday @ 11:00. We'll see what happens next.
